Spending power
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Spending power
Key facts
Counted staff
18
self-reported 2–10 band
Founded
2007
19 years
Legal entities
1
ABR
Office countries
1
1 address
Funding rounds
None on record
Company type
Nonprofit
self-reported
Legal entity
1 brand → 1 confirmed entity
FSHD Global Research Foundation Limited
ABN79128037614
Legal entities
Show as table · FSHD Global Research Foundation: 1 registry entity
| FSHD Global Research Foundation Limited | ABN 79128037614 |
|---|---|
| Confirmed matches | 0 of 1 |
A candidate is a name match on the registry, not a confirmed identity, and two candidates are ambiguity rather than a corporate structure.
Description
With a commitment to complete transparency and accountability the Foundation is leading the charge to fund world class medical research, awareness and education in its aim to find treatments and a cure for facioscapulohumeral muscular dystrophy. Established in 2007 by Bill Moss AO, a well known Australian Businessman, Philanthropist, and sufferer of FSHD, the Foundation came about due to a chronic lack of medical funding and awareness towards this debilitating disease.
With no government funding the Foundation has made up for lost time having successfully collaborated with world class scientists having funded 49 ongoing medical research grants over the past 11 years in the USA, Canada, the Netherlands, Italy, France, Belgium, Spain, Israel, New Zealand and Australia.
This life changing research aims to improve the quality of life for people and families suffering from this cruel and misunderstood disease whilst working to find treatment and a cure for FSHD.
FSHD Global does not operate like your average not for profit, allocating 100% of tax deductible donations to current and future medical research grants. As the first and only FSHD organisation in Australia, the Foundation views each donated dollar as an investment into finding a cure for a disease that does not discriminate, affecting young and old from all ethnic groups with crushing effect.
Our decisions to invest in medical research are made after careful consideration by our scientific committees, who are constantly evaluated and monitored by the Foundation on an ongoing basis.
FSHD funding comes from individuals afflicted by FSHD, their friends, supporters and corporate sponsors. All funds donated are invested through careful consideration, guided by our Scientific Advisory Boards, Board Directors and international Research Committees, ensuring FSHD Global remains a leader in discovering worlds best science.
In its truest sense FSHD Global is a little organisation doing some very big things.
Locations
Country footprint
Show as table · Offices in 1 country
| Countries | 1 |
|---|---|
| Primary country | AU |
All codes: AU
Addresses
- AU60 Castlereagh St; Sydney, New South Wales 2000Primary
Grid intelligence Members
Signals & hiring
Hiring, headcount and registry-change signals, streamed to members.
Latest signal
Hiring activity
Headcount trend
Financials
Registry-filed capital and financial indicators, standardised by TheGrid.
Paid-up capital
Fiscal period
Registered charges
Revenue
Profit / loss
People & contacts
4 employee profiles on record · names withheld.
Names and titles are intentionally absent from this page. The source relation carries no consent record across the privacy regimes this directory spans, so it is never requested and never stored. Search engines see exactly what you see here.
Names are withheld until a consented source exists.
FAQ
Which legal entity operates under FSHD Global Research Foundation?
One New South Wales entity on the ABR: FSHD Global Research Foundation Limited (ABN 79 128 037 614), high confidence.
How many people work at FSHD Global Research Foundation?
18 counted staff profiles at January 2026, above the self-reported 2–10 band.
Where does FSHD Global Research Foundation have offices?
One address on record, Australia only. Primary: 60 Castlereagh St, Sydney, New South Wales 2000.
Has FSHD Global Research Foundation raised funding?
None linked to this brand.
Which companies are listed alongside FSHD Global Research Foundation?
Four peer profiles on record: Madison Marcus Law Firm and Facio BioTherapies Pty Ltd.